Chronic Pain Vent

I don’t know where to start this without rehashing my entire story about my spine and back problems. I don’t have the energy to do that, it’s a story I’ve told more times than I can count and I’m so over it. Long story short, I got a spinal fusion and spinal column shortening that has ultimately caused and created more problems that what it was (supposed to) solve. IMO it has ruined my body, in both appearance and function.

Physical activity was the keystone of my sobriety when I first started trying to quit 13 years ago, and ever since. I’m 36 years old now. Up until the surgery, quite athletic despite back issues. For nearly a year and a half now, I have - at best - stiffness and discomfort, and often actual pain. Everywhere from my mid-spine to my hips. Every single day. My body is 36 but physically and mentally I feel about 80.
Even when I feel good enough to be in the gym like I want, every single gym visit is a threat and uncomfortable. The smallest muscle twinge can set me back. I am meticulous in caring for my body and have been for over a dozen years. I do everything you’re supposed to do as far as stretching, mobility, basic yoga, nutrition, all of it. I have done more imaging, specialist visits, physical therapy than I can tell you about. All while pissing away months of my life at a time, waiting for the next appointment. Waiting for a solution that I’m pretty convinced at this point doesn’t exist.

Over the past few days it’s really flared up on me and I can barely stand up long enough to take myself to the bathroom. I’m probably catastrophizing since I’m in the thick of it, but it’s really the culmination of how things have been for several months now.
I have been strong but chronic pain fucks you up so bad over time. Constant fight-or-flight. It has beaten me up, not just physically but mentally. I feel like I have aged SO much in the past year plus. Chronic pain makes EVERYTHING so much more difficult. It has dominated me. There are pieces of me that have vanished that I don’t feel like I can or will get back. I have no motivation to go do things and spend most of my time home alone. I cannot remember what it feels like to laugh uncontrollably. I don’t get excited about things and can’t remember what that feels like - I can recognize situations where I would normally feel excited, but I don’t actually feel it. I can’t remember what it feels like to feel comfortable and safe in my own body. I get the opposite of that. Carefree? Relaxed? Rested? All left my vocabulary ages ago.

Not to cause alarm, just being truthful and open - I’ve thought about taking a bullet every single day for the past several months, maybe longer. Sometimes it’s a fleeting thing. Sometimes it’s an all day thing. My psychiatrist is aware of this and we’re working on it. Fret not, I am not going anywhere. Not now at least. I don’t have the stones for it, and my dogs need me. Really they are all that has kept me here. I can’t stand the thought of them wondering where their friend went.

I was able to go visit Chicago recently, and while I had persistent discomfort, I was mostly free of actual pain. I am trying to hold onto that but it is not easy. And then when I come home, bam, back in the shit.
I’m 36. I have a long way to go, barring illness, but I cannot live like this. I shouldn’t have to worry about tripping/falling, a sneeze, bumping into a countertop, making a turn in my car, etc. I hate to think about what this looks like in 10 years. Feels like there is nowhere to go but down.

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Oh my friend, I am so sorry you have to go through this. I can’t take away your pain :broken_heart:
I wish I could…
All I can do is tell you that I hear you, that I feel you.

Thank you for sharing. Chronic pain can be so isolating, but you already recognise that. Keep on sharing and venting on here. We will be here with you, listening to your struggles and supporting you as best we can.

Sending you gentle hugs :people_hugging:
:squid:

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It’s exactly what you called it
Chronic pain

I look up to you and your time here on the forum
I read a lot of your posts..I never would have thought all of what you said.

Maybe you can talk to your primary care or Dr to get some help with the pain

Chronic back pain does unfortunately last quite a while
definitly I would talk to a Dr

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I am so sorry you are still suffering with this TMAC. :broken_heart: :pensive_face: I am glad you vented here. Idk if you have looked into a support group specifically for chronic pain, but perhaps that might be helpful in some way. Sending many gentle caring hugs your way. :people_hugging:

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Oh T :people_hugging: I’m so sorry the chronic pain is getting you down. I know how it feels. Granted we have different back issues but I feel you on the chronic pain. I don’t lift heavy and if I do anything that is bent over I’m limping around the next day. I’m sure it’s frowned on to mention but the pain medicine my doctor put me on has helped so much. And the ablation, of course. Not having nerves to transmit the pain has been a game changer. I still feel pressure in my low back but my pain level isn’t near what it was last year when I could hardly walk.

I am happy to hear you are speaking about your feelings and processing them with a therapist. You are valid. You are needed. I hope one day they can come up with something to help you with your pain.

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Yea its hard to live with my Nephew has it and at 6ft2 you would think he a lot smaller due to his curvature, he on waiting list for Lumber decompression surgery

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I’m so sorry you are dealing with this @TMAC :people_hugging: I hope you will find something that eases the pain. Excercise, almost obsessively, was my happy place as well. However, chronic fatigue, brought on by long covid, has put a stop to that. It limits my life so much and leaves me feeling so much older than my years and so incredibly frustrated. I understand how demoralising it can be and I’m sorry. Sending hugs and strength your way :people_hugging::flexed_biceps:

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Thank you for being vulnerable and sharing with us. Vent away. You are not alone on this journey

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I know exactly this. Probably in my own way but when I read this, the twinge got to me. I almost felt a seizing in my body, or mind. Its such a difficulty to experience chronic pain, and the fear of it.

What I’ve learned is it needs management. Routines and ways to even breathe with it, the chronic pain.

I know how isolating it can be too, which is weird because so many of us suffer with such pains. When I read you, its hard to find words because its just a feeling of sadness that you have to go through this. I dont want this for you.

Quiet life, small measures are just really ok and you’re doing amazingly, and I’m happy you spoke about it.

Do you use weed to cope with pain? If you dont want to discuss, I totally get it. I’m assuming you use, but just based on my limited knowledge.

:heart:

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So sorry, my friend :folded_hands:t2::face_blowing_a_kiss::heart:

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@TMAC I hear you Bro, it’s a bastard.

I’ve had chronic lower back pain for about 17 years ish and have, with the help of meds and specific exercises, learnt to live with it.

But, in April I was diagnosed with cp in my upper left chest which is a whole different ball game.
Nothing really works, the pain meds, the lifestyle changes, nothing.

I’ve gone through everything you’ve said even up to the ultimate, which was really on the cards about 10 years ago.

The game changer was being referred to the Chronic Pain Clinic, who deal with pain and that’s it. They have access to all the hospital facilities and more.
They offer courses, exercise classes and complimentary medicine eg acupuncture etc.
Maybe there’s something similar over with you?

I won’t say I know exactly what you are going through as pain, region and disabling effects are different for everyone, but I’ve a fair idea going by my own experience.

The take aways?
Well, go down every avenue open to you medically, chase things up, keep badgering and asking questions of your provider; be a right pain in the arse!

Look into alternative medicine (mindfulness helps me) and ways you can change how you do things, not what you do. Look at it from all angles.
Try not sit on your pitty pot for too long, playing back all the things you’ve lost and can’t do anymore.
BUT above all acceptance is the key, it is now what it is, there’s no going back, nothing will be as it was.

I know all the above is knackering, but like alcoholism, no one is going to do it for you, it’s all down to you!

Hang in there Bro, I don’t know if it’ll get any better soon, but here’s to hoping and praying that something or even someone works for your pain.

Take care and stay strong :purple_heart::blue_heart:
:innocent:&:smiling_face_with_horns:

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I’m probably going to be thinking about this share a lot because i can relate to all of it other than the military service. you put into words a lot of the same sh*t I’m going through.

We can’t be hopeless man we’ve got to have faith and believe that relief is coming to be present and remember at least we aren’t homeless or terminally ill or living in a 3rd world country without access to food/water/medical treatment

helps me to get and stay in gratitude because yea it sucks a lot but there is much to be grateful for even in this state of affairs

i have meds for the pain, i have a vehicle, im not behind bars, i have a roof over my head and clothes to wear, the Higher Power taking care of me all the time in every way.. count your own blessings

may i pm you?

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Hey T
How are you doing today? I am so sorry that you are dealing with all of this. IT DOES SUCK! I am grateful that you shared with us here and that you are talking with your psychiatrist. Grateful that you two are working on the emotions linked to the chronic pain and aftermath of the surgery.

I totally can relate to your post and feel your pain. I have many chronic conditions and they have only gotten worse after I quit my addictions. It is a daily struggle and I know how disheartening and agonizing it can be to not be YOU. To not be able to do what you could or even live a fulfilling active life in the moment. Most days I feel useless and spend all my energy to not feel any of my symptoms and try to breathe through the pain. You my friend are not alone. Please know that you can reach out if you ever need to talk or just need to vent. I don’t have answers but I do know how to listen and can relate.

I personally do not take any meds and work on exercises daily to help manage the pain. Some days even they don’t seem to help. For me swimming in warm salt water has offered some relief. I wish it would be consistent and I could take that sensation with me always but I will enjoy it when I get it.

Hold onto those moments of relief cause that is a sign that your body can heal. I have heard that even nerve damage can heal over time. This gives me hope for the both of us. Hopefully you can find something that gives you mental and physical relief like I’ve found in swimming.

I do know that laughter helps and I hear you on not finding things as funny or being able to full on belly laugh like you used to but please do not give up trying to find that “funny” clip/ stand up / show whatever.

It is ok to cry. I find that I allow myself a few hours a day to release tears. It is a shitty situation but I do have faith that it will get better. I too have had some dark thoughts but in all honesty I do love life too much and at least I’m here. Surrounded by love and life. You my friend are loved and cared for.

You are a wonderful soul and I am so sorry that you are hurting. Sending you hugs and love and hope that you are having a better day today :pray: :people_hugging:

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I am in it today.

Been out of the gym for close to 2 weeks, tried going back yesterday after I was able to walk 5 miles on Sunday relatively comfortably. First thing I did, went to do a basic hip/glute warmup (glute bridges) that I use every time - and I got a sharp ping in my back. So it’s still not right. I got through my workout since chest/bicep lifts don’t really touch the back, but it was still tough just moving around. This morning I had to resign myself to stretching only. Better judgement says to take another week but I fucking hate it. Typically I go for a walk after work on Tuesdays, but that isn’t happening today.

One thing you don’t read about much is the mental and physical fatigue that comes with chronic pain. Even on days where I can get in the gym and get through my lifts without significant pain, it still never actually feels “good”. I’ve been worrying that one day I won’t be able to fight through the stiffness and fatigue anymore and will have to stop exercising/lifting. I don’t know what I would do if that were the case, it has been a part of me for nearly 15 years and it’s what got me out of drinking. I had been reading about hockey great Mike Bossy, and how he had to retire at 30 because of back/knee problems. Couldn’t even tie his own skates anymore. He had to give up working out entirely.

I mentioned it before, but I don’t know the last time I woke up feeling rested. I’ve read that the cause of this (at least in regards to chronic pain) is that your nervous system never fully relaxes/shuts down, so your sleep is not really restorative.

So much of what I write here is just “it’s not fair” bullshit venting, and I’ll own that. And this next thing is just that, and I’ve said it before: man, I fucking hate what this surgery and nerve damage did to my body, pain aside. Prior to surgery (I will toot my own horn here) I was in ABSURD shape, to the point where I would have strangers in public ask me about my routine, nutrition, etc. I don’t think I’m out of shape now (although I also don’t think I’m “in shape”, but that’s another issue for another day), but I’m nowhere even close to what I was. Very average. I don’t get that same kind of attention anymore. It might seem like such a privileged first-world “aw poor you” problem, but it does suck going from one to the other.

Anytime I see a fitness model, or even someone on TV or anywhere that’s in really great shape, it’s a reminder - every fucking time - about what I had and never will have again.

No pain vent is complete without hating my appearance :grinning_face_with_smiling_eyes:

@JazzyS For what it’s worth, I did laugh for the first time in I don’t know how long. I was cuddling up with the dogs to go to sleep and Chief had positioned his “exit door” about a foot from my face. I had my hand looped in under his belly, and with it I literally FELT this boy take a huge inhale and push HARD in order to blast a fart right in my face. It was the abruptness and the sheer power behind it that killed me.

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Thanks for sharing, T.

Life and the cards it deals people will never make sense.

Sounds like maybe travel is a hobby that might replace the gym? That is, if you can make it happen.

Does this make you eligible for any sort of disability benefits?

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:people_hugging:

I’m sorry to hear this; how genuinely sorry I am. Chronic pain sucks.

I can understand…in all of my atoms…I can relate.

It sucks.

Please don’t take your life. Pain is temporary, science continues to improve! Please hold onto that hope!

My mom had debilitating back pain for 40 years. She nursed the pain by becoming a pill popper.

After 3 surgeries, she’s pain free and 6 months sober!

That’s something I never thought possible for her! But she didn’t give up hope.

Thank you for coming here and express your pain with us. I wish there is more we can do!

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Unfortunately travel has a few limitations - the first being it is often expensive as FUCK. lol. If it’s anywhere that involves taking a plane, my dogs stay behind - and the dogsitter fees pretty much double the cost of any trip.

It’s also something I am often hesitant to plan - something could happen with my back in between the booking and the actual trip. My most recent trip (last month, Chicago) was far better than expected in terms of pain. But I’ve also had trips that were miserable because of it.

I am unsure re: benefits. I am still working full time so I haven’t looked into it. I am fully remote though. I am honestly not sure if I could go back to working in an office because of this, if I were put in the position of having to. That’s another fear I have, job insecurity. Like if I lost my job, previously I’d just go get something temporary in retail or doing manual labor until I’m back in the cushy WFH world. Neither one of those things would be an option for me now.

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This had me roaring for sure. Glad your boy could get you to laugh. :hugs:

I am so sorry for the pain you are dealing with and the body image issues as well. I know you are not where you were before the surgery but I do think you are a very attractive and fit looking young man.

These positive health affirmations are something that I recently started and have posted them all over the place. I don’t know what kind of time line I’m looking at but am working on retraining my brain. Hoping to see myself differently and give my body a chance to heal and hopefully find a way to live without pain. It is not easy to wake up day after day in pain and for the pain to only get worse as the day progresses. I hear you friend. I am not giving up hope that a better life exists and I pray that you keep that hope with me.

Here are the positive affirmations I use in case they could be of use to you

Positive health affirmations
  • “I am happy and healthy.”

  • “My body is strong and capable.”

  • “I am grateful for my body.”

  • “I love and respect my body.”

  • “I am healthy in mind, body, and spirit.”

  • “I am whole and complete.”

  • “I choose to be healthy.”

  • “I am worthy of vibrant health.”

Healing:

  • “My body is capable of healing.”

  • “I trust my body’s natural healing power.”

  • “I am recovering and regaining my energy.”

  • “I release what doesn’t serve my health.”

  • “I am grateful for the healing that’s happening right now.”

  • “I am surrounded by love and support on my healing journey.”

Self-Love & Acceptance:

  • “I am at peace with my body.”

  • “I nurture my mind, body, and soul daily.”

  • “I am kind and compassionate towards my body.”

  • “I deserve to be happy and healthy.”

  • “I love my body.”

  • “I am deserving of optimal health and well-being.”

Mind & Body Connection:

  • “My body is in perfect working order.”

  • “Every cell in my body vibrates with life-giving energy.”

  • “My mind is sharp and focused.”

  • “I listen to my body’s wisdom.”

  • “I am in harmony with my body.”

I am sorry that the twinge showed up today but grateful that you were able to do chest / bicep (i know it was not easy and deviating from a set plan in mind is also hard). I also do get 100% the energy it takes to deal with the pain. The PTSD if you will of when a twinge comes up and you feel like Oh shit not again. My pain is never gone away but I do have PTSD of other symptoms that like to show up unannounced.

I recently also found this back stretcher on Amazon. Had seen a few videos exclaiming that it does wonders for sciatica, degenerative disc, back pain due to misalignment and some other things. It hurts like a bitch but I think it may be helping. Again - I just started using it so not sure how long it will take to see results but I am hopeful that I will see em.

You are amazing - It takes great strength to show up for yourself every day when you have to deal with such pain and symptoms. I do hope that you keep hope alive and have a better days ahead :people_hugging:

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Thanks - I am going to keep those affirmations.

I ended up not going to the gym at all this morning. However I was unable to make use of the extra few hours I could use for sleep, tossed and turned from 330 to 530.

God I feel so fucking old all the time. Every morning I wake up feeling nauseous, stiff, and tired.

I hope that stretcher helps you. I tried one back during the pandemic, didn’t help me much (returned it) but I also didn’t know how to properly relax my back at the time - part of why I think my surgery was ultimately not needed. I couldn’t use one now due to the rods in my back.

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Good morning T

Sorry about the sleep. I wonder if something going in as many I’ve talked to (including me) weren’t able to sleep. Hope you can get a caffeine boost (if you do drink coffee or strong tea) to help get you up.

I would find concern in the nauseous part. Do you know what is causing this? Have you started getting dizzy spells? Has the nausea been going on for long? Some factors to consider are low blood sugar, dehydration, acid reflux, or even stress and anxiety.

Dealing with pain and feeling older than you are can be super stressful. Would you think that meditation would help? A friend of mine keep this playing in her TV screen all day and finds that it helps change her mood and the energy in her environment. I have started something similar but mine is a Sikh prayer mantra. https://youtu.be/3aS7GmdVYu0?si=Bz3--KXCjLqjdMsg

I have recently learned that eating handful soaked nuts and seeds before bed can help with sleep and help you to wake up feeling positive and rejuvenated. I only did it once so far and need to get in the habit but I did sleep well (best in years). Also woke up with a can do attitude (was still in pain and such but not feeling defeated). You start by soaking the nuts and seeds you choose (I use walnuts, cashews, Brazil nuts, sunflower seeds, flax and chia seeds) and make sure to drain the water. ).

Just passing in what I’m learning as it may be useful for you. Days we get crap sleep tend to make the next day harder to deal with when you are already dealing with just surviving through the pain. Hope those affirmations help. I’m here if you need to talk.

This is the key and they don’t explain it properly. I know the first few days I was cursing it for being so painful and now I’m still cursing but I do feel like something is opening up for me. I am so very sorry that you will not be able to use this due to the rods (I completely forgot about them).

I do hope you have a wonderful day my friend.:people_hugging::people_hugging: Sorry you missed the gym. Are you able to do any type of workout at home?

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